State guidelines lay framework for deliberately letting some people die.
By Dorsey Griffith
Older, sicker patients could be allowed to die in order to save the
lives of patients more likely to survive a massive disaster, bioterror
attack or influenza pandemic in California.
It's not how nurses and doctors are accustomed to doing things, nor how
Californians expect to be treated. But it is part of a sweeping
statewide plan being praised for its breadth, even as it rankles
providers who will have to carry it out.
The new "surge capacity guidelines" released by the state Department of
Public Health, depict a post-disaster health care environment that
looks and feels nothing like the system most Californians depend on.
It provides for scenarios in which patients could be herded into school
gymnasiums for life-saving care or animal doctors could stitch up the
human wounded and set their broken bones.
The 1,900-page document lays the practical – and ethical – groundwork
for local and county health departments, hospitals, emergency
responders and any able-bodied health care worker likely to be called
upon in a catastrophe.
Striking in its specificity and its frank focus on the need to suspend
or flex established laws and to ration health care, the plan is being
hailed as a model for the rest of the nation.
"I don't know of any state that has taken it to this level of detail in
outlining a surge plan for everyone who needs to respond to an
emergency of this magnitude," said Jeff Levi, executive director of
Trust for America's Health, a nonprofit group that has criticized the
nation's emergency preparedness. "It's exactly the kind of dialogue
that has to happen."
The conversations emerging from the plan will be very painful,
especially for professionals trained to save a life at almost any cost,
said Betsey Lyman, deputy director for public health emergency
preparedness at the state Department of Public Health.
"Today, the practice of medicine is do everything you can for an
individual patient," Lyman said. "This is, 'OK, we have limited
resources. How do we best save the greatest number of lives?' That can
mean saying to an individual patient, I can't give you a ventilator
because I don't have enough for everybody."
The $5 million plan was developed as a result of Gov. Arnold
Schwarzenegger's 2006 health care surge initiative. That $172 million
effort included the stockpiling of millions of doses of antiviral
medications, thousands of ventilators, mobile field hospitals and extra
hospital beds.
But health care officials acknowledge that when and if a global
pandemic or major disaster strikes, no amount of extra drugs or
supplies will be sufficient to manage the impact on an already strained
health care system.
That's why the state assembled public health professionals, hospitals,
ethicists, nurses and others to hash out guidelines for procedures they
hope will minimize red tape and maximize survival rates.
The plan lists, for example, which responsibilities and patient
protections can be waived if the governor declares a state of emergency.
Hospitals will not have to report births, deaths, infectious disease
outbreaks, medication errors, and suspected child or elder abuse.
Existing rules that protect patients' privacy also can be tossed out.
Dr. Ron Chapman, Solano County health officer and a key surge plan
participant, cited as an example the bare-bones approach to caring for
people in the wake of Hurricane Katrina. There, he said, a friend's leg
was sliced open by a piece of glass while he was helping haul away
debris.
"They took him to a Wal-Mart parking lot. He stood in line, walked in,
they sewed him up, gave him a pack of antibiotics and sent him on his
way," Chapman said. "They never asked his name or his insurance status."
The guidelines say California's strict nurse-patient ratios can be
ignored, and nurses can be assigned to jobs for which they have no
experience.
The scenarios worry nursing leaders. "If you are going to throw out
regulations … we know the consequences can be very bad," said Donna
Gerber, government regulations director for the California Nurses
Association. "(The regulations) wouldn't be there except to protect the
public."
During a health care surge, even nonlicensed, or retired health care
providers whose licenses have lapsed, will be recruited to provide
emergency care.
National surveys indicate that more than 40 percent of health care
employees would not come to work during a massive disaster or pandemic,
either because of fear or because of their own household demands.
"It means that people are going to be volunteering and coming in and
helping who may not be properly credentialed," said Duane Dauner,
president of the California Hospital Association.
A hospital janitor, for example, could get an emergency credential to
stitch up wounds or start intravenous lines if that janitor had
experience as a military medic.
It means, Dauner said, that a volunteer veterinarian could be asked to
mend broken bones, stanch bleeding or jump-start a patient's heart.
"In times when there is nobody else, getting someone like a vet to help
out is better than not treating a patient," Dauner said.
It also means that a pharmacist will be able to dole out drugs even
without a doctor's prescription.
"It's not what we are used to, but when someone with diabetes comes in
and they need insulin but they can't get in to see their doctor because
the doctor is sick, why can't a pharmacist give it to them?" Chapman
asked. "It's all about saving lives."
Such practice stands in stark contrast to the normal workings of any
hospital, where restricting the provision of medical treatments to
authorized individuals is serious business.
Even though he is a licensed primary care doctor, Chapman, for example,
is not authorized to operate a ventilator, even in hospitals where he
has privileges to otherwise treat patients.
Under surge guidelines, he said, even a patient's family member could
be trained to maintain the machine.
"Right now, ventilators are considered a high-level technical piece of
equipment," Chapman said. "But in that scenario, we won't have nearly
enough intensive care nurses and doctors to run them."
Perhaps the most jarring aspect of the guidelines, though, is the
seemingly hard-hearted treatment of some kinds of needy patients.
The plan will allow hospitals to empty beds for higher priority
patients, sending ill patients into hallways, make-shift hospitals in
tents, nursing homes or even back home.
"Everybody will have to think differently," Dauner said. "Radio, TV and
police will direct patients where to go. People will be herded like
cats."
Scarce life-saving resources will be rationed under a radically
different system of care that puts the good of the larger population
over that of the individual patient.
That means that instead of starting with the sickest or most critically
injured, treatment will go first to those more likely to survive with
immediate intervention. A patient's kidney disease or
congestiveheartfailure could diminish their chances of getting
life-saving treatment in such an emergency.
The plan emphasizes that treatment decisions must not be based on a
patient's ability to pay for care, their perceived worth to society, or
whether their past behaviors contributed to their health status.
These will be very difficult decisions to make, particularly for nurses
who – by their training and nature – are patient advocates, said the
CNA's Gerber.
"The nurse is usually the one who says 'Excuse me, but I don't think
that's the right dose, or I really don't think my patient is ready to
be discharged," she said. "These are very draconian kinds of situations
and … that is not what we are trained to do."
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